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Tips for creating Standards Group Pages
22 May 2014 | | Contributor(s):: Denise Warzel
The Standards Portal offers a way to organize dsicussions and resources related to a set of standards. The organizing construct can be either a community interested in sharing data or using common tools, or by a particular type of standard, for example demographics or biomarkers. An example of a...
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Getting Started at the Standards Portal Pilot
27 Mar 2014 | | Contributor(s):: Denise Warzel, Ann Christine Catlin
The Standards Portal Pilot is now available! (Click the link for the portal home page.)Why use the standards portal? See more information about its genesis and use cases in a study conducted for the VCDE caBIG community here. If you are participating in the Pilot, please join the...
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Standards Portal CRFs Complete View
19 Mar 2014 | | Contributor(s):: Denise Warzel, Sumudinie fernando, Ann Christine Catlin
This DataView resource page is for the Standards Portal CRFsUse this DataView to browse,search, explore and download the complete set of columns for NCI case report form standards at the Hub. These CRFs were brought to the Hub for clarification, discussion and discovery. They were assembled by...
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Standards Portal CDEs Common Data Fields
19 Mar 2014 | | Contributor(s):: Denise Warzel, Sumudinie fernando, Ann Christine Catlin
This DataView is for the Common Data Fields of the Standards Portal CDEsUse this DataView to browse, search, explore and download the essential set of columns for NCI common data elements standards at the Hub. These CDEs were brought to the Hub for clarification, discussion and discovery. They...
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Standards Portal CRFs Common Data Fields
19 Mar 2014 | | Contributor(s):: Denise Warzel, Sumudinie fernando, Ann Christine Catlin
This DataView is for the Common Data Fields of the Standards Portal CRFsUse this DataView to browse, search, explore and download the essential set of columns for NCI case report form standards at the Hub. These CRFs were brought to the Hub for clarification, discussion and discovery. They were...
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Why Use the Standards Portal at the Hub?
19 Mar 2014 | | Contributor(s):: Denise Warzel, Sumudinie fernando, Ann Christine Catlin
The materials attached to this page were provided by Baris Suzek, who at the time was the Informatics Project Lead at the Innovation Center for Biomedical Informatics at Georgetown University School of Medicine. He conducted a study for the caBIG VCDE community to help clarify some of the...
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Standards Portal Vocabulary DataView
15 Mar 2014 | | Contributor(s):: Sherri de Coronado, Denise Warzel, Ann Christine Catlin, Sumudinie fernando
The DataView for terminology referenced/used by the CDEs and CRFs currently contained in the Standards PortalThe DataView on this resource page can be used to browse, search, explore and download the NCI concepts for vocabulary referenced by the CDEs and CRFs uploaded to the Standards Portal....
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Standards Portal CDEs Complete View
15 Mar 2014 | | Contributor(s):: Denise Warzel, Ann Christine Catlin, Sumudinie fernando
This DataView on this resource page is used to explore the Standards Portal CDEsUse the DataView provided on this resource page to navigate, browse, search, explore and download the complete set of columns for NCI common data elements standards at the Hub. These CDEs are brought to the Hub for...
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NCI Standard CRFs
15 Mar 2014 | | Contributor(s):: Denise Warzel, Ann Christine Catlin, Sumudinie fernando
Working in conjunction with NCI has developed a collection of Standard Case Report Forms (CRFs) for use in developing new protocols. The project and its status are described here. The reuse of sections from standard CRFs helps to ensure that data collected in different studies is compatible and...
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Performance Status Scoring : a standards portal resource
15 Mar 2014 | | Contributor(s):: Ann Christine Catlin, Sumudinie fernando, Denise Warzel, Angela Kummerow
The scoring scale used may depend on patient population, disease, study goals and other criteria. Many definitions of the scale scoring do not match the standard.What is Performance Status?Performance status attempts to quantify the general well-being of cancer and other patients. The score...
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Adverse Events Terminology Standards, Data Elements and Case Report Forms
15 Mar 2014 | | Contributor(s):: Sherri de Coronado, Ann Christine Catlin, Sumudinie fernando, Denise Warzel
Standards for coding, naming and grading adverse events (AEs) in cancer clinical trials include both cancer-focused and broader systems that all result from collaboration among academic, governmental, and pharmaceutical industry clinical investigators. They are all based on the need for...
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TCGA Common Data Elements
15 Mar 2014 | | Contributor(s):: Ann Christine Catlin, Sumudinie fernando, Denise Warzel
TCGA Common Data ElementsTCGA version 2.6 CDEs are the standard elements that were used in validation of clinical data in the TCGA 2.6 data files. The data files are available for download at the Data Matrix. This resource page at the NCIP HUB presents the CDEs for easy search and discovery....